The speaker list for Orphan Drugs Summit 2014 consists of experts and executives from the world of orphan drugs. The list of speakers will be revealed here shortly.

If you would like to participate as a keynote presenter, panelist, or roundtable moderator, please contact the Content Director with your contact details and topic of interest at:

Amo Mostofi, Editorial Content Director
Contact: amo.mostofi (at) copperberg.com


Sales Conference

Download the agenda for Orphan Drugs Summit 2014 as a PDF file: Orphan Drugs Summit 2014.pdf

Post Show Report

Download the Orphan Drugs Post Show Report as a PDF file: Orphan Drugs Post Show Report 2014.pdf


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A note from the editor

On behalf of the entire Copperberg team, welcome to the annual Orphan Drugs Summit!

In 2013 Copenhagen hosted the Orphan Drugs Summit for the third time and offered over 150 delegates the unique opportunity to meet and interact with all major orphan drugs stakeholders.Once again Orphan Drugs Summit proved it is the leading rare disease event in Northern Europe. A well-established platform where pharmaceutical companies of all sizes, hospital representatives, researchers, patient organizations, venture capitalists, regulatory bodies, and industry associations meet to discuss and influence the future of orphan drugs. The Summit is designed to increase interaction among participants, promote knowledge flow and instigate partnerships and alliances for those working with orphan drugs.

Once again we have further increased networking opportunities and invited leading industry professionals with gripping presentations to address the following topics:
  • Market Access challenges and strategies
  • Incentives & regulatory framework
  • Patient registries
  • Access to Orphan Drugs
  • Partnerships and Financing
  • Pricing & Reimbursement
  • Scientific & Clinical Development
Welcome on board and I hope you will enjoy the 4th annual Orphan Drugs Summit in Copenhagen on 17-19 September 2014.


Amo Mostofi, Editorial Director, Orphan Drugs Summit


Park Inn by Radisson Airport Hotel, Copenhagen, Denmark

5 minutes from the Airport and located just five minutes from the Copenhagen International Airport and minutes from the bustling city centre. A new metro line is an easy walk from the hotel and takes only five minutes to reach Copenhagen’s city centre.

  • The hotel is close to the beautiful beaches of Amager Strand, golf courses and the bustling shopping mall, Field’s
  • A new metro station is two minutes away; Copenhagen’s city centre is an easy five-minute train ride
  • This Copenhagen Airport hotel boasts 296 fully equipped rooms and six suites
  • Free Wireless High-speed Internet is available in all guest rooms
  • Free car parking provides additional convenience
  • Guests will enjoy the indoor swimming pool, fitness centre, sauna and solarium

Partner with us

International, government, private, and vendor collaboration will be the key driving force for future drug development. As such collaboration in the development of new drugs for rare disease is at the forefront of every stakeholder agenda. The 4th annual Orphan Drugs Summit brings together key stakeholders and delivers a number of key case studies and expert speakers to help fulfill education and networking requirements for collaborative work.

However these same organizations still require expertise from vendors, both current and potential. By sponsoring the 4th annual Orphan Drugs Summit you will have access to senior decision makers, allowing you to present your solutions to their specific challenges.


Partners 2014

PRA International
Bang & Olufsen Medicom
IPI – International Pharmaceutical Industry
The Orphan Druganaut Blog
Technology Networks
Swiss Biotech Association
Rare Disease Communications
Medical News Today
American Pharmaceutical Review