WHEN 22nd -23rd September 2016
WHERE Amsterdam, The Netherlands

Thank you!

Thank you for making the 5th Annual Orphan Drugs Summit another great success!

With payers, hospital representatives, patient organisations, venture capitalists, regulatory bodies, drug developers, researchers and industry associations joining us the whole orphan drugs ecosystem was represented at the 5th Annual Orphan Drugs Summit! There was room for great discussions and engagement through 8 plenary sessions, 4 stream sessions, 2 debates, 2 case studies, 4 round tables, 3 masterclasses, and 1 interactive panel.

Besides the evident issues in the orphan drugs market like market access and pricing & reimbursement, a very strong renewed patient centered focus became very obvious. Things like Patient registries and collective data platforms has been proven as the key in Orphan Drugs. But what are the implications of the data revolution and involving patients more in their diagnostics and treatment?

We invite you to join us to discuss these important questions, collaborate, network and learn at the 6th edition of the Orphan Drugs Summit in September 2016.

I am already looking forward to seeing you there!



Maaike Gerritse

Editorial Content Director, Orphan Drugs Summit

ods2015posteventreport Download the Orphan Drugs Summit 2015 Post Event Report as a PDF- file: Orphan Drugs Summit 2015 Post Event Report.pdf

Watch a summary of the Orphan Drugs Survey results

Download the Orphan Drugs Summit 2015 agenda

Orphan-Drugs-Summit-2015-1Download the Orphan Drugs Summit 2015 agenda as a PDF- file: Orphan Drugs Summit 2015.pdf

Download Orphan Drugs Ecosystem Mapping Survey Report 2015

Orphan-Drugs-Ecosystem-Mapping-Report-2015-1Download the Orphan Drugs Ecosystem Mapping Report 2015 as a PDF file: Orphan Drugs Ecosystem Mapping Report 2015.pdf

Download Journal Orphan Drugs 1st edition

Journal-Orphan-Drugs-1st-edition-1Download the Orphan Drugs Ecosystem Mapping Survey Report 2015 as a PDF- file: Journal Orphan Drugs 1st edition.pdf



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